Finding your best during Caregiving

I found Denise Brown and her Caregiving.com community in the fall of 2017.  It was more than three years since my Mom had passed from Alzheimer’s. Sometimes I still needed reassurance that the ways my life had changed were normal. I had read a bit about the National Caregiving Conference and decided to tune in to the Livestream to see what value it might have for us Alzheimer’s Kids. 

The presenters and panelists I saw were all positive survivors. They made me feel accepted. They made me feel normal. I realized I had found my tribe.

This year I’m thrilled to be a presenter myself at that same event.

Recently, NCC18 host Denise Brown led a Virtual Caregiving Summit to give Caregivers a taste of what they can expect at the conference. Denise invited Stephanie Antoine, Karen Laing and me for a late-afternoon virtual cup-of-tea and a chat about finding our best during Caregiving.  Here it is for you to enjoy.

If this was helpful, I invite you to watch the other 2018 Virtual Caregiving Conference videos. All of the interviews are with real Caregivers like you.  Their varied perspectives are likely to resonate with you, and may even spark some fresh ways of thinking.  Watch all the 2018 Virtual Caregiving Conference videos here. 

Mark your calendar for November 9-10, 2018. The Third Annual National Caregiving Conference (NCC18) will be held on those days at the Chicago Marriott O’Hare in Chicago Illinois.  Family caregivers and former family caregivers will share their experiences, insights and solutions. The great news is that the conference is available to both those who can travel to Chicago and those who benefit from attending via Livestream.  The preliminary agenda for the Third Annual National Caregiving Conference can be found here.

 I’ll be presenting Curiosity and Learning: Evidence you are doing a good job caregiving.  Often, Caregiving is a life-long vocation. I’ll be encouraging healthy Caregivers to measure success by what they learn.  I’ll introduce proven Lean Process Improvement principles and tools to make this a simple and rewarding practice. Join me on the COPING track on Saturday, November 10, 2018

I encourage you to check out Caregiving.com. I love the fresh perspectives of those caring for Loved Ones in varying conditions; and the reminder that Caregiver needs are the same even when our Loved One’s diagnosis is different. Caregiving.com was founded by Denise Brown in 1996 to help and support family caregivers.  Caregiving.com is a community of supportive individuals caring for a family member or friend. This community cares for parents, spouses, siblings, grandparents and anyone we consider family. Caregiving.com cares for you before, during and after caregiving.  http://www.caregiving.com

Your Friend on the Journey,

Barbara

 

Barbara Ivey to present at Third Annual National Caregiving Conference

Curiosity and Learning: Evidence you are doing a good job caregiving

FOR IMMEDIATE RELEASE

Fort Mill, SC

 

The Third Annual National Caregiving Conference (NCC18) takes place on November 9-10, 2018 in Chicago Illinois.  The agenda features family caregivers and former family caregivers sharing their experiences, insights and solutions.

The conference is available to those available to travel to Chicago as well as those who benefit from attending via Livestream.  Pre-conference training programs and workshops will be held Thursday, November 8th, and a day of service will be held on Sunday November 11th.

Barbara Ivey will present Curiosity and Learning: Evidence you are doing a good job caregiving.  Often, Caregiving is a life-long vocation. Barbara encourages healthy Caregivers to measure success by what they learn.  In this session, Barbara introduces proven Lean Process Improvement principles and tools to make this a simple and rewarding practice. Ivey’s presentation is part of the Coping track on Saturday, November 10, 2018

The preliminary agenda for the Third Annual National Caregiving Conference can be found at https://www.caregiving.com/ncc18/agenda/

Caregiving.com was founded by Denise Brown in 1996 to help and support family caregivers.  Caregiving.com is a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving.  http://www.caregiving.com

Barbara Ivey (@alzbarbie) writes THE PERFECT THING blog for people with a parent diagnosed with Alzheimer’s and a parent who is their Caregiver.  Barbara’s belief is that Caregivers-to-Caregivers experience Alzheimer’s differently from their Caregiver.  This means they need different resources during and following their journey.  Barbara is dedicated to sharing those resources – those Alzheimer’s life-preservers – because she believes they might actually help save the lives of Alzheimer’s Kids. Based in Fort Mill, SC, Barbara Ivey is the author of Patterns in Time® and Patterns at Hand, which were both published in 2017.

Contact Author

Barbara Ivey

The Perfect Thing LLC

+1 704-877-9283

 

 

Yes – Professional Women and Men Need Alzheimer’s Support Groups!

ALZHEIMER’S, YOU AND YOUR SUPPORT


Recently, I had the honor of meeting two fine people who each had been an Alzheimer’s Caregiver to a Loved One. The woman had cared for her husband through Alzheimer’s; the man cared for his wife through Frontotemporal Dementia (FTD). Their stories, their bravery, and their strength reminded me of the sturdy threads of love that link together all Caregiving efforts.

These lovely Caregivers gave me a special gift that day: a special moment of being understood.  A moment where I could share my experiences as an adult child of someone with Alzheimer’s (I call myself an ‘Alzheimer’s Kid’).  A moment when each one of us could nod in agreement that – yes – we had indeed all lived through many similar experiences.

It left me wondering…”Is this what it feels like to be part of a support group?”

You see, somehow, I stumbled through my Mom’s entire Alzheimer’s journey without ever knowing that all family members benefit from participating in an Alzheimer’s Support Group. 

So today, I’m extending the invitation to you.  If you are a Caregiver, or a Caregiver-to-the-Caregiver – call your local chapter of the Alzheimer’s Association (or your local Hospice or your local Assisted Living Facility) and ask for the time and location of an Alzheimer’s Support Group near you. Support Group acceptance helps you be more accepting with your Alzheimer’s Loved One.  Is there a better gift can you give your Loved One than that?

As you look forward to your first meeting, re-read the stories below, and look forward to being part of a community of people who ‘get’ where you are and what you are living through.

Alzheimer’s Kids Can Join Support Groups Too

Support Dad with his support group
 

~Peace,

Barbara

 

Your Caregiver needs to go to school

ALZHEIMER’S, YOUR PARENTS AND THEIR CAREGIVER EDUCATION


“Mom did really well while I was at Caregiver College last night,” Dad says proudly to me into the phone.

“Oh, that’s right,” I reply. “Your first class!  Did Mom go with you?”

“Better than that,” Dad answers. “You remember our friends Kay and Johanna?  Well, they really helped me out.  Kay stayed with Mom at the house, and Jo and I went to class together.”

“And how did Mom do with Kay?”

“She did great.  They played Rummikub, drank coffee, and sang together. Mom and Kay have always gotten along well.”

With a little trepidation, I dig deeper. “And how did class go for you and Jo?”

“There was a lot of information.  A lot of paper,” Dad says, revealing some underlying anxiety.  “Plus I was worried about your Mom.”

“Sounds like it took a lot of effort to concentrate on the class, Dad.”

“Yes. Lucky for me, Jo took all of the handouts home with her.  She is going to summarize them and mail me her notes.  You know, so I remember what I need to do.”

“Dad, you are blessed to have such good friends,” I say. (And I think to myself: so are we.)

Thank you, good Lord, for sending these dear friends to love and support both of my parents.

Often, friends want to help but have yet to know how.  Here’s a suggestion.  Encourage them to help make it possible for your Alzheimer’s Caregiver to attend caregiver education classes.  Caregiver education is critical for the Alzheimer’s Caregiver because this disease affects so many aspects of their Loved One’s life.  Caregiver classes present an opportunity for Caregivers to learn, accept and prepare for a future where their Loved One’s thinking, decision making, memory, emotions, hygiene, physical health, safety and more will be disrupted by this disease.

Can you encourage or enlist your parent’s friends to support the Alzheimer’s Caregiver in your life, as he or she prepares for the Alzheimer’s caregiving journey?