Finding your best during Caregiving

I found Denise Brown and her Caregiving.com community in the fall of 2017.  It was more than three years since my Mom had passed from Alzheimer’s. Sometimes I still needed reassurance that the ways my life had changed were normal. I had read a bit about the National Caregiving Conference and decided to tune in to the Livestream to see what value it might have for us Alzheimer’s Kids. 

The presenters and panelists I saw were all positive survivors. They made me feel accepted. They made me feel normal. I realized I had found my tribe.

This year I’m thrilled to be a presenter myself at that same event.

Recently, NCC18 host Denise Brown led a Virtual Caregiving Summit to give Caregivers a taste of what they can expect at the conference. Denise invited Stephanie Antoine, Karen Laing and me for a late-afternoon virtual cup-of-tea and a chat about finding our best during Caregiving.  Here it is for you to enjoy.

If this was helpful, I invite you to watch the other 2018 Virtual Caregiving Conference videos. All of the interviews are with real Caregivers like you.  Their varied perspectives are likely to resonate with you, and may even spark some fresh ways of thinking.  Watch all the 2018 Virtual Caregiving Conference videos here. 

Mark your calendar for November 9-10, 2018. The Third Annual National Caregiving Conference (NCC18) will be held on those days at the Chicago Marriott O’Hare in Chicago Illinois.  Family caregivers and former family caregivers will share their experiences, insights and solutions. The great news is that the conference is available to both those who can travel to Chicago and those who benefit from attending via Livestream.  The preliminary agenda for the Third Annual National Caregiving Conference can be found here.

 I’ll be presenting Curiosity and Learning: Evidence you are doing a good job caregiving.  Often, Caregiving is a life-long vocation. I’ll be encouraging healthy Caregivers to measure success by what they learn.  I’ll introduce proven Lean Process Improvement principles and tools to make this a simple and rewarding practice. Join me on the COPING track on Saturday, November 10, 2018

I encourage you to check out Caregiving.com. I love the fresh perspectives of those caring for Loved Ones in varying conditions; and the reminder that Caregiver needs are the same even when our Loved One’s diagnosis is different. Caregiving.com was founded by Denise Brown in 1996 to help and support family caregivers.  Caregiving.com is a community of supportive individuals caring for a family member or friend. This community cares for parents, spouses, siblings, grandparents and anyone we consider family. Caregiving.com cares for you before, during and after caregiving.  http://www.caregiving.com

Your Friend on the Journey,

Barbara

 

Alzheimer’s, family relationships and Caregiver survival

ALZHEIMER’S, YOU AND YOUR FAMILY RELATIONSHIPS


By the time you’ve found this post, you’ve probably learned a thing or two about Alzheimer’s. You probably know that today – in March 2018 – there is no way to stop, slow or reverse this disease. Perhaps you’ve read a few terrifying statistics.  You’ve probably already seen enough photos of frail, gray-haired people to last a lifetime. If your heart is pounding and your palms are sweating, you are in good company.

Alzheimer’s is a tough diagnosis to hear.  It requires effort to accept. While Alzheimer’s is busy degenerating the brain of one family member, caring for that person chips away at the physical and mental well-being of other family members. 

I had a Mom with Alzheimer’s and a Dad who was her Caregiver. Through our fifteen-year journey, I learned first-hand that we children will be involved in our parent’s Alzheimer’s.  Our choice is whether to raise our hands to volunteer or wait to be conscripted.

I’m here to prepare (adult) children for family-life with a parent with Alzheimer’s. What good is preparing?  Preparation gets you ready to respond to the daily surprises that come with Alzheimer’s.

What kind of surprises are on the way?  Here’s one that flipped my thinking around for good.  I realized that my Mom’s Alzheimer’s diagnosis actually meant that two (2) family members needed extra care:  my Mom AND my Dad (Mom’s Caregiver). 

How serious is the Caregiver’s need for care?  Research shows that the Caregiver usually dies before the person with Alzheimer’s. So, pretty serious.

If you’d like to give your Caregiver a chance to survive Alzheimer’s, you’ve come to right place. I’m sharing what I’ve learned from fifteen years of trial-and-error. How about we move forward together?

If you’re curious about what Alzheimer’s might bring in the next decade of your life, watch this short (less-than-6-minute) interview. Guess which of us is more nervous talking about Alzheimer’s. Maybe we have something in common with you?

Your Friend on the Journey,

Barbara



PATTERNS IN TIME Order today

  • 10 year timeline
  • Changes in caregiving
  • Resources that helped
  • How out-of-town children can help

 

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Adult children need support through Alzheimer’s too


Design award for PATTERNS IN TIME

Alzheimer’s-friendly holidays

ALZHEIMER’S, YOUR PARENTS AND HOLIDAYS


Radio personality Francene Marie hosts this power-chat with me and Katherine Lambert.

Gobs of tips for happier holidays with Loved Ones living with Alzheimer’s.

(Link to recording is below the photo.)

 L to R, Katherine Lambert, CEO Western NC Alzheimer's Association, Barbara Ivey, Author and Alzheimer's Kid, Francene Marie, Radio Personality
L to R, Katherine Lambert, CEO Western NC Alzheimer’s Association, Barbara Ivey, Author and Alzheimer’s Kid, Francene Marie, Radio Personality